Sound Medicine -- July 13, 2002

Barbara Lewis and Dr. Steve Bogdewic talk to physicians and experts about:

Language problems in the elderly
A fight against Batten disease
Treating psychological effects of cancer
Listen to the show:
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Language problems in the elderly

The eyes might be the mirror to the soul, but how we communicate reflects the workings of our brain.

We talk about communication disorders in the elderly with Laura Murray, PhD, a scientist with the Indiana University Center for Aging Research and specialist in communication and cognitive disorders. She explains her research into the similarities between depression and early Alzheimer disease, and how confusion between the two can stall a diagnosis.

With the patients in her study, Dr. Murray focused on the ability to use and understand high-level language, the ability to make inferences, for example. She describes the subtle similarity of symptoms, and urges patients to seek diagnosis if they are having difficulties communicating with and understanding others. She recommends we stay physically and mentally active to maintain good language skills. Dr. Murray also discusses aphasia, a communication impairment resulting from stroke. She reports that stroke patients who suffer from aphasia can regain much of their language skill.

Dr. Laura Murray is an associate professor of the Department of Speech and Hearing Sciences at IU Bloomington, where she also leads an aphasia support group.

Resources
The American Speech-Language-Hearing Association provides excellent information about speech and language problems in adults and children. Includes a referral service.
IU's aphasia support group
Visit National Stroke Association Web site for information about stroke, the most common cause of aphasia.
The Alzheimer's Association web site offers support and a variety of information about the disease.
National Mental Health Association Web site has good information on depression, including a factsheet on depression in older Americans.

A fight against Batten disease

An Indianapolis family is racing against the clock. Phil Milto and his wife Tricia have three boys, two of whom have Batten disease, a fatal neurological disorder that robs a child of sight, hearing, and motion. Because Batten disease is rare, it's not a one that researchers or pharmaceutical companies have actively tried to cure. Thanks to the methodical and tireless push by the Milto family, however, researchers are now making headway on a cure.

Phil Milto tells his family's story and describes using his skill as a project manager to "sell" Batten disease to medical institutions and biotech companies. He describes his unique business organization, the nature of Batten disease, and the multiple therapeutic options under development, including gene therapy.

Resources
Read more about the Milto family and its work at the Nathan's Battle Foundation Web site. Get updates on scientific breakthroughs, and find out how you can help.
Get general information about Batten disease from the National Institute of Neurological Disorders and Stroke from the National Institutes of Health.

Treating psychological effects of cancer

Perhaps the hardest thing about having cancer is living with it. From diagnosis through treatment, your thoughts are never far from illness. One person at the Indiana University Cancer Center specializes in helping people deal with the mental and emotional impact of a cancer diagnosis.

Psychologist Shelley Johns is the psychoeducational coordinator for the IU Cancer Center's Complete Life program.

Dr. Johns explains the holistic approach of the Complete Life Program, which encourages coping skills. Among these skills, she explains, is using one's sense of humor. She talks about patients who learn to joke as a way to bond with their families and medical caregivers. Johns also discusses developing realistic and neutral thinking about the disease and how depending on "positive thinking" can be counterproductive.

Resources
Dr. Johns recommends two books by Norman Cousins: Anatomy of an Illness, 1979, New York, WW Norton; and Head First: The Biology of Hope, 1989, New York: EP Dutton.
She also recommends a book by Allen Klein called The Healing Power of Humor, 1989, Los Angeles: Jeremy Tarcher/Putnam press.
Finally, Johns likes the Humor Project's Laughing Matters magazine. Write to: 110 Spring St. Saratoga Springs, NY 12866. Or visit the Humor Project Web site, a clearinghouse for theory, research and practical ideas related to humor.
 
We're pleased to thank our founding sponsors: IU Medical Group, Clarian Health and Wishard Health Services.

Coming on the July 20 program: ovarian cancer & gene therapy
Two IU cancer doctors explain their research into altering genes that kill cancer cells and rendering genes less resistant to the curative effects of chemotherapy and radiation.

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Health Quiz —
Sterilization regrets?

More than 10 million women in the United States have had a tubal sterilization -- how often do they regret it later? To answer this question, researchers at the Centers for Disease Control and Prevention studied information from a national survey of women who had undergone sterilization, or whose husbands had had a vasectomy. What percentage of the women regretted the surgery five years later?

a. About 6 percent
b. About 20 percent
c. Nearly 50 percent

Find out!


Medical mystery — a new use for the Gamma Knife

The Gamma Knife is an advanced radiation treatment system that physicians at Indiana University School of Medicine have been using for nearly five years to treat a variety of conditions -- such as brain tumors or vascular malformations. Recently, however, researchers have started testing it to treat a well-known neurological disorder that strikes 150,000 people each year. What disease is being put under the Gamma Knife?

Find out!



Weekly Notebook — Communicate with aphasic adults

Here are tips for conversing with people experiencing communication problems as a result of a stroke or a neurological disorder.

• Talk to the person with aphasia as an adult. Use simple sentences. Talk in normal volume and emphasize key words.
• During conversation, minimize or eliminate background noise (TV, radio, other people) whenever possible.
• Make sure you have person's attention before speaking to them.
• Praise all attempts to speak and encourage all modes of communication: speech, writing, drawing, gestures, eye contact, etc.
• Do not frequently correct speech. Downplay errors.
• Give the person time to respond.

Source: Information provided by the National Aphasia Association