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Show: December 5, 2010:
- Accountable Care Organizations
- Beet Juice Staves Off Dementia
- Raising Awareness for Spinal Muscular Atrophy
- The Guardian Angel Gene
- Hands-Only CPR
- Sound Ethics: A Syphilis Experiment in 1940's Guatemala
- View all topics for the week
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Raising Awareness for Spinal Muscular Atrophy
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Air date: December 5, 2010
Host: Barbara Lewis
Interview: Diane Bock, reporter
Bill & Victoria Strong, founders of the Gwendolyn Strong Foundation
Spinal muscular atrophy, or SMA, is the largest genetic killer of infants and young children worldwide.
It’s a hereditary disease which destroys the nerves that control voluntary muscle movement.
Reporter Diane Bock brings us a profile of Bill and Victoria Strong, a couple that knows all too well the ravages of SMA, and who’ve become activists in fighting the disease.
The Strongs are in their early thirties. Gwendolyn, their first and only child, is three. She was diagnosed with SMA when she was six months old.
Additional Resources:
- Find out more about spinal muscular atrophy at the Gwendolyn Strong Foundation website.
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